News

Christmas Party 2011

posted Nov 10, 2011 5:39 PM by Lars Johnson

Our Annual Christmas Treat will be held on December 4th from 2 pm. at Autism Place. Donations are welcome. We look forward to seeing all parents/guardians/supporters.

AGM

posted Nov 10, 2011 5:36 PM by Lars Johnson

Our  Annual General Meeting for 2011 will be held on November 12th at Autism Place from 2.00-4.30 pm. Please make every effort to attend.

Tribute to Mrs. Etheline Copeland

posted Nov 10, 2011 5:32 PM by Lars Johnson

Foundation member of the Autistic Society and Chairperson of ASTT's South Support Group   

Excerpts of a tribute delivered at Mrs. Copeland's funeral service at the St. Paul's Anglican Church on Monday 24th October 2011

 

I first met Mr. and Mrs. Copeland when we got together with a few other families in 1989 at the Kiwanis Club Library Building at St Helena Village, Piarco. We met as parents who had children and young persons with autism mainly to help support each other.

 The Copelands were more informed of the neurological disorder because Gabrielle, their daughter was a teenager at the time. Mrs. Copeland was seeking help and answers and we decided to form a group. They became very active executive members of the parent support group which we named the Autistic Society of Trinidad and Tobago. It was established in May of 1990.

For many years ASTT has tried to lobby Governments to recognize the needs of families who have children /adults with autism. One of the needs families are desperate to have satisfied is to provide respite care facilities. These Centres must be set up with personnel who are trained to take care of our children and adults with autism. Many of our adults with autism are placed in homes for the aged, Institutions for the mentally ill or other places where they do not get the appropriate therapies and variety of activities they require.

 Mrs. Copeland tried for many years to set up such a facility in south and while waiting on the resources needed the group used the lady Hochoy School at Gasparillo on a Saturday and then rented the Lodge in Medine Street so that some therapies could be offered to our children and adults with autism during the week.

I wish to appeal to the Government  to meet with us and work with us in establishing Centres in different parts of T&T. The South group needs a Centre and when it is built I would like to suggest that Mrs. Copeland's name be given to it as a lasting memorial to her.

In 2007 Mrs. Copeland and her friend Mrs. Fenton together with a few members of ASTT started the South Support Group under the Autistic Society of T&T.

There are so many persons who would like to pay tribute to Mrs. Copeland and I have received many emails which I have sent on to the family,including a letter from Autism Tobago-also formed by members of ASTT.

I always considered Mrs. Copeland to be a personal friend and friend to my family. She was not only a friend but a strong co-worker in our efforts to improve the lives of our children with autism and the families of persons with autism.        

My family  and I extend our heartfelt sympathy to the Copeland family and friends, and as  President of ASTT I wish, on behalf of all the families of ASTT throughout T&T (~400), to extend deepest condolences to her family and I can assure her family that her memory and contribution will continue to live on. Her passing is a great loss to us all.

I will miss our conversations during which so many plans were discussed.

It is my hope and prayer that the South Support Group will continue the work of Mrs. Copeland - to continue to welcome and support the many families who have a child/young person with autism.

 

Teresina Sieunarine

President

ASTT

 

George Ardavanis conquers the Sahara

posted Apr 19, 2010 7:46 AM by Lars Johnson

After six (6) days of running and walking over 254kms of hot Saharan sand, George Ardavanis completed the Marathon des Sables!!  The race finished on Saturday 10 April where George placed 539 out of 1008 competitors (over 100 participants withdrew during the course of the race).

George dedicated his participation in the MDS to the Trinidad & Tobago Autistic Society.  Lars Johnson of the Society described raising an Autistic child as having to run a marathon everyday for six years, after six years, after six years.    

As George returns to Trinidad today, please join us in expressing heartfelt congratulations to him on this tremendous accomplishment and support his cause by donating to the Society via Republic Bank a/c #3400-1674-8101.  

 George, we at 3M are so proud of you.  Thank you for letting us be a part of this.

Dr. George Ardavanis

posted Apr 19, 2010 7:41 AM by Lars Johnson

Dr George Ardavanis, an international engineering and finance consultant currently based in Trinidad, will participate in the 25th Marathon des Sables in the Sahara Desert from April 2 to April 12 to raise awareness and funds for the Autistic Society of Trinidad and Tobago.

The Marathon des Sables (MDS) (Marathon of the Sands) is a six-day, 254 km (156 mile) ultra-marathon, which is equivalent to six regular marathons. The longest single stage is 91 km (55 miles) long. This multi-day race is held every year in the southern Moroccan desert. It is considered the toughest foot race on Earth.

Dr Ardavanis has undertaken a number of expeditions which have been documented in books and articles. One of his recent expeditions involved ascending the highest peak in Mt Kilimanjaro in Tanzania, Africa (Uhuru Peak (5, 895), where he proudly carried Trinidad and Tobago’s flag.

Throughout his childhood, Dr Ardavanis was involved in sports competitively. In the late 70’s, 80’s, and 90’s Dr Ardavanis completed his studies in Electrical Engineering (BSEE, MSEE), Business (MBA) and Finance (PhD). He is a registered engineer with the Greek Chamber of Engineers as well as a registered economist with the Greek Chamber of Economists. His academic and professional life forced him to take residence in USA and then to travel around the world. He currently works as an international consultant in Engineering and Finance and resides with his wife in Port of Spain, Trinidad. One of the main goals of Ardavanis’s participation in the Sahara race is to sensitise people about autism in Trinidad and Tobago and to help raise funds for this cause. Autism is a complex developmental disability that typically appears during the first three years of life and affects a person’s ability to communicate and interact with others. There is no known single cause for autism, but increased awareness and funding can help families today.

International data indicate that the prevalence of autism is on the rise — one in every 150 American children, and almost one in 94 boys. The Autism Society of the US estimates that the lifetime cost of caring for a child with autism ranges from $3.5 million to $5 million, and that the United States is facing almost $90 billion annually in costs for autism.

In Trinidad and Tobago, as of October 2007, there were over 300 families registered with the Autistic Society of Trinidad and Tobago, but local awareness remains relatively low and funds are needed to advance the cause of the Society.

April 2 is World Autism Awareness Day and Ardavanis will be observing it in the Sahara, running the Marathon des Sables for the children and their families. George appeals to all persons to help the cause and spread the word.

George is already sponsored by 3M (Trinidad and Tobago), WSP International (Sweden), Herne European Consultancy (UK) and Green Leader (UK) in this endeavour, whom he thanks for their financial and emotional support.

Fund raising is ongoing. At this time and until April 13, all individual (non-corporate) contributions made will be applied directly to the grant for the Autistic Society of Trinidad and Tobago.

To make a contribution, please make a deposit to the following account number: Republic Bank, George Ardavanis, Account number: 340016748101.

For more information about the race, please check George’s website at www.xtreme.ardavanis.com.

For nformation on the Trinidad and Tobago Society, please check out www.autismtt.org; and for information on autism, please visit www.autism-society.com.

Press Release: Passing of Mr. George Daniel

posted Apr 11, 2010 6:59 AM by Lars Johnson

Press Release from Autistic Society of T&T re. Passing of Mr. George Daniel of T&T chapter of Disabled Persons International.

 On behalf of the families of the Autistic Society of T&T I wish to extend our deep sympathy to the family, friends and colleagues of Mr. George Daniel

He was passionate in championing the rights of the disability community and joined in the protest outside the National Flour mills in 2003, risking his health in the process.

He represented his organization at many overseas conferences and the UN, in an effort to have persons with disabilities included in society and ensure individual human rights for all. 

There have been many positive outcomes of the protest outside the National Flour Mills For example, the organization of a Think Tank on Disability, Integration and Development at the University of The West Indies , St. Augustine , in 2004. The aim of the three-day Think Tank was ‘to discuss ideas and strategies that would facilitate the successful integration of persons with disabilities into the arena of education and ultimately into all areas of society.’

This led to the formation of a new course, ‘Social Disability Studies,’ which is open to students of UWI St. Augustine.

 There are still many barriers to full social participation of persons with disabilities. We hope that others in T&T will take up the challenge to work for equal opportunities in education and the job market, as well as equal access to buildings and services for all our citizens. 

Teresina Sieunarine
President
ASTT
Home Tel: 669-0462
ASTT Office 646-5506 (Mon-Wed 9.30am-1pm)

“Young Adult Social” is Set To Grow

posted Mar 13, 2009 7:13 AM by Lars Johnson   [ updated Mar 13, 2009 8:25 AM ]

"Young Adult Social"  planting seedlings at Autism Place under the watchful eyes of  Autism Resource

Specialist Ms Kari Dunn Buron (left) and Kirk Niles, Music Therapist, at Autism Place.

 

The following is quote from “The Quirk Factor: Resistance is futile” blog by a parent of a son with autism: “Autism (with a capital “A”) to me, says that I accept my child wholly. I celebrate his differences and his quirky-ness. I advocate diversity. I try to empower him. I am proud of his successes, no matter how small they seem. I hope he holds onto the compassion he has in his heart into adulthood. I do not think he needs “fixing”. I am proud that he is my son, and sometimes I am humbled by that very same thought.”

 

Autism is a brain disorder that affects the ability to communicate, socialize, and maintain ordinary relationships with others. People with autism demonstrate a range of verbal and intellectual capacities, from low to high. They also demonstrate a broad range of symptoms. Children with autism may, for instance, resist even minor changes in their routines. They may also appear detached or withdrawn in social situations, unable to engage in ordinary conversation. In severe cases of autism, children may make repetitive body movements such as rocking; they may also engage in aggressive and self-injurious behavior such as biting their own hands.

 

As parents it is difficult to accept autism, especially when society expects us to nurture “perfect” children who will bring home scholarships and be popular among their peers. The Autistic Society aims to support parents and help them to understand the condition so that they can be the guides for their child in this confusing and strange world.

 

Recently a few families who have autistic young adults were involved in setting up an Adult Social Group at Autism Place facilitated by Mrs. Kari Dunn Buron, Autism Specialist, of Minnesota, USA. Mrs. Buron has kindly volunteered her time and expertise, with ASTT, annually since 1999.

As stated earlier, persons with autism are driven by routines and the programme incorporated this fact when organising activities. On arrival to Autism Place they were shown the schedule of activities and collected cards with their names. They awaited the start of the programme by doing a favourite activity. This was followed by a ten minute walk in the community and a relaxation period on their return.

A series of fun activities followed and the programme ended with lunch and cleanup. In order to accommodate the autistic persons’ need for following routines, after each activity they saw an arrow pointing to the next activity. Therefore, they all knew that the programme had come to an end when they were shown the arrow at the last activity - “Goodbye”.

 

We hope that everyone will help us commemorate World Autism Awareness day on the 2nd of April, the day designated by the United Nations to recognize the growing numbers and special needs of autistic people in our world. During April the Autistic Society will be organizing a month of various activities to help raise awareness of autism. Please call 663-8397 for more information.

 

Teresina Sieunarine

ASTT President

ASTT's "Power To Make a Difference" Award from REPUBLIC BANK LTD.

posted Dec 18, 2008 9:56 PM by Autism Society Site   [ updated Feb 27, 2009 6:49 AM by Lars Johnson ]

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